EXPERT BACKS TCI, MILHORAT & BOLOGNESE

"EXPERT BACKS NY HOSPITAL'S BRAIN SURGERY UNIT"
......is what the headline reads-
off the CALIFORNIA AP newswire

Helloooo... where are are you Heidi Evans? Isn't the NY Daily Rag interested?
Let's take a look-see at what it says...

FRANK ELTMAN, Associated Press Writer
GARDEN CITY, N.Y. (AP) ― An expert on a rare form of brain surgery is backing a Long Island hospital under scrutiny after two of its top physicians were suspended for leaving a patient on the operating table, the hospital said Tuesday.

In a review commissioned by North Shore/Long Island Jewish Health Systems, UCLA neurosurgeon James Ausman called the Long Island hospital's Chiari Institute 'the finest center of its kind in the world.' A spokesman for North Shore, which released Ausman's review, declined to say how much the neurosurgeon was paid.

The institute draws patients worldwide who have a rare congenital brain defect called Chiari malformations, which can cause headaches, dizziness and other pain. Ausman cited the institute's experience and results with Chiari malformations, calling it 'a model for the care and treatment of any disease entity.'"

read more...
http://cbs2.com/wireapnewsca/Leading.brain.surgery.2.1659210.html


I can't wait to read what Ms. Evans will have to say about this. Surely this is important to her.

On another note:
Michael (now 13) needs decompression surgery soon. He's been out of school (being tutored) for 2 months with severe pain and dizziness. Surgery was recommended, but the extent and urgency are being determined with further testing that he's now undergoing, as Mike's chiari malforation is further complicated by a retroflexed odontoid.
He's having a swallow study, 24 hr. cardiac holter montoring and sleep study.
I will post the results as they come in.

Jen

HEIDI EVANS, TCI, FAITH and AGENDAS

It really sucks when you lose or question you faith in your physicians. These past few months of witchhunting by Ms. Evans of the NY Daily News has caused many patients at TCI to wonder who to trust.

So here I sit with 5 MRIs and an LP for myself-
4 for Katie
5 for Michael
5 for Grace
~Myriads of concerns, from leaking CSF via nose/eyes, monster headaches, chronic nausea, dizzy spells, migrating pain, tingling, numbness, cognitive dysfunction, serious short-term memory lapse.... ...most of you already know the never-ending list

Bring it all back to TCI?? Maybe they're the best place to be right now?? Surely they're on their toes??
We feel so lost.

One thing I do know is this...
I trust my surgeons over the PRESS a millions times over. As an avid reader of the news and follower of politics, I know the destructive and manipulative power the press holds.
I would bet my last dollar that Heidi Evans has an agenda way beyond her journalist interest in this case. I don't know what it is, but I have faith it will be exposed.

Do you not find it odd that only Milhorat/Bolognese's names have been defamed? Who was "ortho surgeon" "#3"? Who were the anesthesiologists?? Where are their suspensions?

I will go next week to TCI and try to embrace the confidence I once had. ....and I will continue to walk past every issue of the NY Daily News and laugh at their pathetic state of desperation.

Dr. Bolognese has been reinstated

Dear NY Daily News,
Bite me

Dear Heidi Evans,
You are the most pathetic excuse for a "journalist" as I've ever known. You are the epitome of biased spin. I DARE you to interview me. I will give you at least 50 Milhorat/Bolognese supporters for every whiner you can drum up. Up to the challenge??
Is Bolognese's vindication on the front page of your rag today? I bet not.
To hell with you and what you did to the Chiari community.
Karma sucks, you bottom feeder.

Jennifer Kelly

Milhorat gone- Where does this leave us?

Surely anyone who has found their way to my blog has already heard that Dr. Thomas Milhorat has retired after outrageous claims and a susbsequent suspension of his license.
I refuse to post the articles, because I won't give that rag (The Daily News) an ounce of legitimacy.
I'm writing here now because I'm saddened that this topic has been placed "off topic" (not allowed to be discussed or mentioned) at most leading Chiari Support sites.
I can understand not wanting to pass misinformation during a time when the full picture has yet to be seen or known.... However, I know that many of us are looking to bounce ideas off one another.. We're looking for support and to share our concerns.
Regardless of what comes out this week about Dr.Bolognese, one this is sure- The Chiari Institute as we know it is in dire straits. Without Milhorat, many of us are left not knowing the fate of who will ever perform future surgeries.
Dr. Milhorat is the lead surgeon. Dr. Bolognese is the intraoperative doppler guy. While Dr.Bolognese is brilliant, I'm not so sure he'll be enough. He's like the jelly without the peanut butter.
Many of us (or our family members) are awaiting surgeries. Now what!?
Will TCI remain open? Who else is there? I've always hung my hat at TCI's door. I know the names of many other Chiari experts (Oro, Benzel, Frim, Menezes etc..) but which of them are the best? Which of them had faith and support for TCI docs?

I've made my opinion clear to many about the April 10th incident to many...and I've been vocal about it at the Newspaper's comments sections. I don't want to rehash it here if I don't have to.
I have respect for both of these men, while I have no respect for the press. There is much more to this story and I doubt the truth will ever be told in the Daily News print. North Shore University Hospital also has a lot to lose by allowing the real story to leak. At the very least, NSUH was (and has been) complicit in allowing Universal Safety Protocols to be ignored for the sake of expediency($$$). There is absolutely NO EXCUSE for placing a patient under general anesthesia without the surgeon at the very least scrubbing.

Obviously much more is to be revealed, but I felt that it's impotant to have a place where people are free to post their thoughts and fears without being told it's "off topic"... because we're all left high & dry at the moment. We're used to being left high & dry by ignorant dismissive doctors who know nothing about chiari, but dismissal by our very own support base is inexcusable.

Don't ignore the elephant in the waiting room.