Monday, January 12, 2009


Well... it's beena long time since I've posted. Too long..
A combination of election sulking, starting a new job with more/longer hours, feeling like crap, kids feeling like crap, crazy holidays and a long month of Internet interruptions (Cablevision sucks)- I haven't found or made the time to post.

I hope 2009 offers better things.

Good news/ bad news
So Gracie has been having a tremendous amount of pain lately. It's mainly been at night, but it does happen during the day too. The pain seems to be mainly in the area of her left temple. Nothing seems to help. We've tried Motrin, Tylenol, Oxycodone and Valium- None of them do anything to help. She cries almost every night for hours before bed and it breaks my heart.
The good news is that she had MRIs of her head and neck this past week and as far as I can tell her syringes are almost GONE... Okay, well they're not gone-gone but they look a hell of a lot better than a year ago.
This was a year ago (Jan 2008)
This is now- 5 months post decompression.

While the good news is that I am thrilled the decompression surgery seemingly helped the syringomyelia..
The bad news is, I have no idea why she's still in so much pain. She has continued night incontinence and a lot of nausea.

We see the Chiari Institute docs in February