tag:blogger.com,1999:blog-8129370017065857704.post553875801513746748..comments2015-03-02T14:19:14.861-05:00Comments on Droopy Brains: EXPERT BACKS TCI, MILHORAT & BOLOGNESEDroopy Brainshttp://www.blogger.com/profile/05076704639829321537noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-8129370017065857704.post-63156453423802273192010-04-28T12:08:14.605-04:002010-04-28T12:08:14.605-04:00Thanks for that article Jen, it seems to me that t...Thanks for that article Jen, it seems to me that those who still support TCI are in the minority now. <br /><br />Sad.<br /><br />All the best to your son and your family.Allen Y.https://www.blogger.com/profile/11546173489546215179noreply@blogger.comtag:blogger.com,1999:blog-8129370017065857704.post-31416342158143180332010-04-28T07:36:31.268-04:002010-04-28T07:36:31.268-04:00Thanks for posting the great article about TCI ~ f...Thanks for posting the great article about TCI ~ finally a win for TCI. I wanted to pass along this info to you about a chiari genetic study me and my family are participating in since your family has many that suffer from chiari. Some day we will have a cure. Hugs ~ Lace<br /><br />Genetics of Chiari Type I Malformation<br /><br />The Duke Center for Human Genetics is actively recruiting families who have TWO OR MORE family members with Chiari type I malformations, with or without syringomyelia. These family members must be related to each other by blood, and BOTH must be willing to participate. At the current time, we are not able to enroll families in which the only diagnosed members are a parent and child. If the family meets these criteria and wants to receive study participation information, please contact the study coordinator at 1-877-825-1694 or chiari@chg.duhs.duke.edu. More information can be found on our website, http://wwwchg.duhs.duke.edu/diseases/chiari.html.<br /><br />IRB #Pro00011231<br /><br /><br />Heidi Cope, MS<br />Certified Genetic Counselor<br />Duke University Medical Center<br />Center for Human Genetics<br />1-877-825-1694<br />heidi.cope@duke.edulace1070https://www.blogger.com/profile/15930420458484842948noreply@blogger.com